A few weeks ago Atlanta-based Rap Superstar T.I. came 2 Lithonia Middle School 2speak with the kids about the importance of staying in school, and being leaders not a followers!
He made a special trip to Ms McFadden's class 2speak with her students & pose 4 pics
from left 2right on 2nd pic..Principal of Lithonia Middle Ms. Patricia E. May, Michael Henry, Malik Moore, Ms. Karen McFadden, Jaquise Morgan, Ms. Jocelyn Elston, Khari Ellis, Douglas Bynoe --to the left of Principal May is Ne'Shawn Boone, and T.I.
Shout out to T.I. !!!!!!!!!!
Monday, February 23, 2009
Sunday, February 22, 2009
Court Ruling
The Federal "vaccine court" has rejected claims either measles/mumps/rubella (MMR) vaccine or thimerosal in vaccines contributed in childrens Autism.
See link below 4 further reading:
http://www.webmd.com/brain/autism/news/20090212/vaccine-court-rejects-autism-claims
See link below 4 further reading:
http://www.webmd.com/brain/autism/news/20090212/vaccine-court-rejects-autism-claims
WHY
The federal "vaccine court" has rejected claims that either measles/mumps/rubella (MMR) vaccine or thimerosal in vaccines caused childrens autism.
I am torn when it comes to speaking about this vaccine subject. As a parent with a child of Autism, I no 1st hand how difficult it is to deal with this developmental disorder. It's very frustrating and confusing so, I understand parents wanting to figure out a reason why/how this disorder came into their lives thru their children.
I no thru life experiences that there is a reason 4everything. When I first learned of my pregnancy fourteen years ago, I was ecstatic. I immediately ceased all negative behavior and I began 2do everything right. During my pregnancy I had regular pre-natal visits to my midwives, I took my iron and vitamin pills, and when I developed gestational diabeties I was worried & scared but, I followed the midwives/doctors instructions and monitored my glucose reading, seeing a nutritionist, and giving myself insulin shots 2x's a day. So, a few years later when we received Malik's diagnosis we were baffled! I knew I had followed all my doctors orders like I was supossed 2!
Ova the years I've learned that in oda 4me 2cope with Malik's developmental disorder I stopped looking 4reasons why, and learned 2dealt with it. Within the last 5 or 6 years I had been hearing about the vaccine controversy. Since, no one really knows what causes Autism, parents started 2notice after their children got their 1st year vaccine shot the children started 2regress in their learned behavior. I believe those parents may be warranted in their belief but, that was not the case with us.
I noticed something wasn't right with my son's behavior way b4 his 1st year vaccine shot.
I became concerned with Malik when he acted as if he couldn't hear, I would call his name and he would not respond, I noticed he had weak muscle tone, I would promp him up on the bed and in the fold of our sofa and he would just roll over onto his side as if his back couldn't hold him up, and when I would let him stand and hold him by his arms it was like his arms and legs couldn't support his weight. I noticed something else about Malik, we would often visit my moms house and she had a ceiling fan. We would lay Malik on his back and he would become mesmerized with the fan's circular motion. He would stare, and stare, and stare at the fan! I do realize that kids often stare at objects that are different and new 2them but, Malik would look at that fan as if it were speaking 2him. At times, he would look in my eyes with that same intensity. Now, I am no doctor as I previously stated but, I knew something was not quite right with that behavior. Keep in mind that during this time his regurgitation during feedings were a whole other story within itself.
As far as Malik crawling, walking, and talking those behaviors were significantly delayed! When he crawled he crawled backward then he just stopped, when he talked, he said basic words then he just stopped. Malik started walking when he was about 18months.
Any logical person would try & figure out why or what happened 2 their child I can respect and understand that but, I've come 2the conclusion that trying 2understand WHY is not as important 2me anymore. I really didn't need a court ruling 2reaffirm why! years ago I learned
GOD SAID SO, THATS W H Y !!!!!
I am torn when it comes to speaking about this vaccine subject. As a parent with a child of Autism, I no 1st hand how difficult it is to deal with this developmental disorder. It's very frustrating and confusing so, I understand parents wanting to figure out a reason why/how this disorder came into their lives thru their children.
I no thru life experiences that there is a reason 4everything. When I first learned of my pregnancy fourteen years ago, I was ecstatic. I immediately ceased all negative behavior and I began 2do everything right. During my pregnancy I had regular pre-natal visits to my midwives, I took my iron and vitamin pills, and when I developed gestational diabeties I was worried & scared but, I followed the midwives/doctors instructions and monitored my glucose reading, seeing a nutritionist, and giving myself insulin shots 2x's a day. So, a few years later when we received Malik's diagnosis we were baffled! I knew I had followed all my doctors orders like I was supossed 2!
Ova the years I've learned that in oda 4me 2cope with Malik's developmental disorder I stopped looking 4reasons why, and learned 2dealt with it. Within the last 5 or 6 years I had been hearing about the vaccine controversy. Since, no one really knows what causes Autism, parents started 2notice after their children got their 1st year vaccine shot the children started 2regress in their learned behavior. I believe those parents may be warranted in their belief but, that was not the case with us.
I noticed something wasn't right with my son's behavior way b4 his 1st year vaccine shot.
I became concerned with Malik when he acted as if he couldn't hear, I would call his name and he would not respond, I noticed he had weak muscle tone, I would promp him up on the bed and in the fold of our sofa and he would just roll over onto his side as if his back couldn't hold him up, and when I would let him stand and hold him by his arms it was like his arms and legs couldn't support his weight. I noticed something else about Malik, we would often visit my moms house and she had a ceiling fan. We would lay Malik on his back and he would become mesmerized with the fan's circular motion. He would stare, and stare, and stare at the fan! I do realize that kids often stare at objects that are different and new 2them but, Malik would look at that fan as if it were speaking 2him. At times, he would look in my eyes with that same intensity. Now, I am no doctor as I previously stated but, I knew something was not quite right with that behavior. Keep in mind that during this time his regurgitation during feedings were a whole other story within itself.
As far as Malik crawling, walking, and talking those behaviors were significantly delayed! When he crawled he crawled backward then he just stopped, when he talked, he said basic words then he just stopped. Malik started walking when he was about 18months.
Any logical person would try & figure out why or what happened 2 their child I can respect and understand that but, I've come 2the conclusion that trying 2understand WHY is not as important 2me anymore. I really didn't need a court ruling 2reaffirm why! years ago I learned
GOD SAID SO, THATS W H Y !!!!!
Friday, February 20, 2009
Autism Insurance Reform Bill
Readers,
There is a new bill being introduced in Georgia. It's the Autism Insurance Reform Bill. This bill allows some of the finiancal burden taken off parents who have children with Autism. The bill will allow private health insurance to cover screening, diagnosis, testing and treatment of the Autism Spectrum Disorder. Click link below 2see how you can help:
www.autismvotes.org/georgia
There is a new bill being introduced in Georgia. It's the Autism Insurance Reform Bill. This bill allows some of the finiancal burden taken off parents who have children with Autism. The bill will allow private health insurance to cover screening, diagnosis, testing and treatment of the Autism Spectrum Disorder. Click link below 2see how you can help:
www.autismvotes.org/georgia
IEP MEETING
Yesterday, I had our annual IEP (Individualized Education Program) meeting w/Malik's 2 teachers Ms.Mcfadden& Ms Jalliett. Alot of his goals we set for the beginning of the year he's met them or is almost to the point of meeting them. I am really interested in getting Malik 2the point where he can be as independent as possible. My biggest concern 4him is not 2let anyone take advantage of his non-verbal status. I want 2concentrate more on his life skills. My dream is Malik gettin 2the point where he can take care of his personal, living, and financial needs 2the best of his ability. I no it takes time & he is definitely a work in progress! Our IEP meeting proved he is on his way 2turning my dreams into reality...
For instance, the goal set for him 2improve using his augmentative device &computer keyboard 4typing words was 70% he is at 50%, his ability 2comprehend &express vocabulary relative to classroom activites, personal management/vocation/leisure/community using his augmentative communication device was set a 60% he is @40%, Malik's ability 2add money amounts using a calculator was set @90% he is currently @70%, his ability 2shop from a list was set at 70% he is doing this task @50%.
Malik is also doing well Academically. In math he can do basic addition, subtraction, and multiplication on a simple calculator, in Science he is also doing well, he participates in simple experiments at school, he does english assisgnments on a program called: news2you, the program is designed 2aid in his english skills, the same news2you program also helps him with his social studies skills it helps him identify current people/events that r going on in the world.
So, the IEP meeting was good I'm glad he is doing well he still has a few months until school is out so, hopefully more of his goals will be met.
Another personal goal of mine would entail Malik interacting more with his peers. This summer I will sign him up 4horseback riding lessons and maybe a basketball program or anything that will enforce interaction with others outside of our family. He definitely needs 2get out of his little comfort zone! I no he has the potential 2do anything ....Malik will meet all his goals I guarentee it! Watch him, and I will be sure 2post it when he has his next IEP meeting !!!
For instance, the goal set for him 2improve using his augmentative device &computer keyboard 4typing words was 70% he is at 50%, his ability 2comprehend &express vocabulary relative to classroom activites, personal management/vocation/leisure/community using his augmentative communication device was set a 60% he is @40%, Malik's ability 2add money amounts using a calculator was set @90% he is currently @70%, his ability 2shop from a list was set at 70% he is doing this task @50%.
Malik is also doing well Academically. In math he can do basic addition, subtraction, and multiplication on a simple calculator, in Science he is also doing well, he participates in simple experiments at school, he does english assisgnments on a program called: news2you, the program is designed 2aid in his english skills, the same news2you program also helps him with his social studies skills it helps him identify current people/events that r going on in the world.
So, the IEP meeting was good I'm glad he is doing well he still has a few months until school is out so, hopefully more of his goals will be met.
Another personal goal of mine would entail Malik interacting more with his peers. This summer I will sign him up 4horseback riding lessons and maybe a basketball program or anything that will enforce interaction with others outside of our family. He definitely needs 2get out of his little comfort zone! I no he has the potential 2do anything ....Malik will meet all his goals I guarentee it! Watch him, and I will be sure 2post it when he has his next IEP meeting !!!
Sunday, February 15, 2009
YEAH AMC THEATERS !!!!!!
I stated in eariler post how years ago I was very ignorant and new 2exactly what Autism was. Back when my ignorance was bliss, I made numerous attempts at movie dates. Movie dates that included me & Malik, along with different girlfriends and their kids also with my family members and their children. I would oftentimes have 2leave the movie theater because Malik would not sit through the movie. At first he would just scream 2the top of his lungs, then when we would try again he would get up and run up & down the aisle fascinated with the floor lighting. I couldn't figure it out, why was he acting like that? "its just a movie, for Godness sake." I never mentioned it 2any of his doctors, I dont know why, I just never did.
Autism is often confusing. No 2kids are the same. Children with Autism look at things very differently than kids who do not have Austim. Things I would think Malik would find difficult like learning his way around a computer or even being interested in a computer he did with ease. Other things like playing with toys appropriately proved 2be very difficult. He was fixated on spinning all toys and objects in a circular motion.
After a few years passed & Malik had been doing so well developing. School was going good, he was making progress in all his therapies, his doctor visits were up to par and everything was great so, when Malik showed an interest in Spiderman by watching the coming attractions on TV, I decided 2try again & take him 2the movies. Truth be told, I threw the earlier experiences out of my mind and attributed the behavior 2him being 2young.
Again, I took Malik 2the movies I couldn't believe how he acted. He kept getting up out of the seat and sitting back down, and because of the surround sound he kept looking around the theater and ducking each time a special effect came through the speakers, then he put his hands over his ears. After that gesture I knew it was time to go.
Of course , since then I've become more educated about Autism, I now know his sensors were being overloaded. Still that didn't stop me from feeling like the worst parent 4forcing Malik on many occassions 2try and sit there and watch a movie.
I reminised about my own childhood, some of my fondest memories were in the movies. I along with my cousins loved 2go to the loews theatre on 145th st and 7th ave in NYC 2catch the Sunday Matinee which often featured Pam Grier. I thought how unfortunate Malik would never have a chance 2experience that.
Well that was b4 reading this Sunday's AJC. I ran across a article in the Sunday Living section about a theater having certain days that cater 2sensory-friendly showings. I encourage you all if you frequent the movies please patronize AMC theaters, they are the ones who are sponsoring sensory friendly showings.
On different occassions they will feature screenings that will have lights turned up, and the sound turned down. They are also doing away with the coming attractions and many ads the theaters now show.
The next showing that is sensory-friendly is scheduled for March 14th @10 a.m. the showing will be at Phipps Plaza, Discover Mills 18, and Southlake 24. This is a big step 4families living with Autism, It is Wonderful ! I believe AMC Theaters should be commended 4this bold gesture and allowing Malik the opportunity 2have his own childhood movie memories !
AMC, thanks 4being understanding and sensitive 2children with Autism.
YEAH AMC THEATERS!!
Autism is often confusing. No 2kids are the same. Children with Autism look at things very differently than kids who do not have Austim. Things I would think Malik would find difficult like learning his way around a computer or even being interested in a computer he did with ease. Other things like playing with toys appropriately proved 2be very difficult. He was fixated on spinning all toys and objects in a circular motion.
After a few years passed & Malik had been doing so well developing. School was going good, he was making progress in all his therapies, his doctor visits were up to par and everything was great so, when Malik showed an interest in Spiderman by watching the coming attractions on TV, I decided 2try again & take him 2the movies. Truth be told, I threw the earlier experiences out of my mind and attributed the behavior 2him being 2young.
Again, I took Malik 2the movies I couldn't believe how he acted. He kept getting up out of the seat and sitting back down, and because of the surround sound he kept looking around the theater and ducking each time a special effect came through the speakers, then he put his hands over his ears. After that gesture I knew it was time to go.
Of course , since then I've become more educated about Autism, I now know his sensors were being overloaded. Still that didn't stop me from feeling like the worst parent 4forcing Malik on many occassions 2try and sit there and watch a movie.
I reminised about my own childhood, some of my fondest memories were in the movies. I along with my cousins loved 2go to the loews theatre on 145th st and 7th ave in NYC 2catch the Sunday Matinee which often featured Pam Grier. I thought how unfortunate Malik would never have a chance 2experience that.
Well that was b4 reading this Sunday's AJC. I ran across a article in the Sunday Living section about a theater having certain days that cater 2sensory-friendly showings. I encourage you all if you frequent the movies please patronize AMC theaters, they are the ones who are sponsoring sensory friendly showings.
On different occassions they will feature screenings that will have lights turned up, and the sound turned down. They are also doing away with the coming attractions and many ads the theaters now show.
The next showing that is sensory-friendly is scheduled for March 14th @10 a.m. the showing will be at Phipps Plaza, Discover Mills 18, and Southlake 24. This is a big step 4families living with Autism, It is Wonderful ! I believe AMC Theaters should be commended 4this bold gesture and allowing Malik the opportunity 2have his own childhood movie memories !
AMC, thanks 4being understanding and sensitive 2children with Autism.
YEAH AMC THEATERS!!
Friday, February 13, 2009
Autism Speaks
Hello Readers,
I recently joined another Autism Forum. Autism Speaks is a very well known organization.
They do alot of research sponsoring and fundraising. Its an informative site.
check link below:
http://www.autismspeaks.org/
I recently joined another Autism Forum. Autism Speaks is a very well known organization.
They do alot of research sponsoring and fundraising. Its an informative site.
check link below:
http://www.autismspeaks.org/
Another Doctor Visit
Today, Malik was out of school and we had another dr visit @ his regular physician. Well, the visit was routine so he could get clearance 4his dental sedation on Feb, 22nd, 2009. When I made the appointment 4 Maliks dental visit the office manager informed me of how long its been since Malik has been 2the dentist. I disputed her records because I no I keep all Malik appointments. Then it dawned on me. How could I 4get about our big scare last year.
Tuesday April 14th, 2008 was like any other Tuesday morning. I dropped Malik off at school went back home watched tv and this particular morning I felt like making breakfast so I made an omelet w/hashbrowns and coffee,while I enjoyed TV when I got a call from Maliks teacher who seemed 2be out of breath and nervous. She was telling me 2stay calm but, she needed 2no if Malik has ever had seizures be4. I said, Seizures, no! then I began 2question her, I asked why was she out of breath ? I wanted 2no what was wrong ? and where was Malik ? and what was wrong, I asked again for her 2 tell me what is wrong? ...what !!!!
She told me Malik just had a seizure in gym class. Needless 2say I couldnt comprehend I wasn't understanding a seizure he had never ever had a seizure before, again I screamed and wanted 2no why was this happening 2us again and what was I doing wrong ? I remembered thinking how I didnt want Malik on medication 4the rest of his life 2control seziures!
That early morning call from Ms McFadden started a whole new quest of finding out what was wrong and what was making Malik have seizures. I called his physicain she told me 2take Malik 2Childrens Hospital they ran tests. Nothing, then they referred us 2get a EEG and a brain scan Nothing, then we were referred 2a cartiologist. Nothing, now in between all these appointments and visits and test Malik is still seizing. At times 2 or 3 x's a day and I am freaking out. I went back 2his primary care I told her very forcefully "look we r running all these test and doing all this waiting and still havent found out what is going on with him someone has 2tell me something because he is still falling out and seizing. I had also noticed Malik was limping and bending over when he walked like a ole man, which I also express 2 her. I told her thats not how a young person walks and that it wasn't normal. She told me that was normal 4kids with Autism 2walk like that.
Now, I am not saying anything negative about Dr's but, I wish they would listen more 2parents. When I as a parent express something 2 u as a physician... LISTEN ! I no u have degrees and r highly educated but, I too, have a degree. It's in MOTHERHOOD from one of the top schools in the country, The School of Hardknocks, Trial & Error!!!! and I graduated top in my class ! When this first started 2 happen 2us I called Dr Brian Delaney! (he's been voted one of the top doctors in NYC) he also happens 2be like a dad 2my husband Shawn & me. He said make sure the doctors draw blood. Which I think is pretty logical and I told Malik's primary just that. She said 2me well blood test are not going 2show why he's having seizures. Well guess what, I bet she drew blood after all those appt's and test came back normal and I bascially demanded he get blood drawn ! finally blood was drawn and immediately they referred me to a endocronologist. Malik's vitamin D and potassium levels were basically depleted this was causing him 2 spasm/seize. He was diagnosed with Hypoparathyroidism!... I thought finally a answer a conculsion ! Although, Malik has 2take Oscal indefinitely. I remain hopeful that our next doctor visit 2the endocrinologist on Feb. 26th, 2009 will allow Malik 2live a Oscal free life!
Tuesday April 14th, 2008 was like any other Tuesday morning. I dropped Malik off at school went back home watched tv and this particular morning I felt like making breakfast so I made an omelet w/hashbrowns and coffee,while I enjoyed TV when I got a call from Maliks teacher who seemed 2be out of breath and nervous. She was telling me 2stay calm but, she needed 2no if Malik has ever had seizures be4. I said, Seizures, no! then I began 2question her, I asked why was she out of breath ? I wanted 2no what was wrong ? and where was Malik ? and what was wrong, I asked again for her 2 tell me what is wrong? ...what !!!!
She told me Malik just had a seizure in gym class. Needless 2say I couldnt comprehend I wasn't understanding a seizure he had never ever had a seizure before, again I screamed and wanted 2no why was this happening 2us again and what was I doing wrong ? I remembered thinking how I didnt want Malik on medication 4the rest of his life 2control seziures!
That early morning call from Ms McFadden started a whole new quest of finding out what was wrong and what was making Malik have seizures. I called his physicain she told me 2take Malik 2Childrens Hospital they ran tests. Nothing, then they referred us 2get a EEG and a brain scan Nothing, then we were referred 2a cartiologist. Nothing, now in between all these appointments and visits and test Malik is still seizing. At times 2 or 3 x's a day and I am freaking out. I went back 2his primary care I told her very forcefully "look we r running all these test and doing all this waiting and still havent found out what is going on with him someone has 2tell me something because he is still falling out and seizing. I had also noticed Malik was limping and bending over when he walked like a ole man, which I also express 2 her. I told her thats not how a young person walks and that it wasn't normal. She told me that was normal 4kids with Autism 2walk like that.
Now, I am not saying anything negative about Dr's but, I wish they would listen more 2parents. When I as a parent express something 2 u as a physician... LISTEN ! I no u have degrees and r highly educated but, I too, have a degree. It's in MOTHERHOOD from one of the top schools in the country, The School of Hardknocks, Trial & Error!!!! and I graduated top in my class ! When this first started 2 happen 2us I called Dr Brian Delaney! (he's been voted one of the top doctors in NYC) he also happens 2be like a dad 2my husband Shawn & me. He said make sure the doctors draw blood. Which I think is pretty logical and I told Malik's primary just that. She said 2me well blood test are not going 2show why he's having seizures. Well guess what, I bet she drew blood after all those appt's and test came back normal and I bascially demanded he get blood drawn ! finally blood was drawn and immediately they referred me to a endocronologist. Malik's vitamin D and potassium levels were basically depleted this was causing him 2 spasm/seize. He was diagnosed with Hypoparathyroidism!... I thought finally a answer a conculsion ! Although, Malik has 2take Oscal indefinitely. I remain hopeful that our next doctor visit 2the endocrinologist on Feb. 26th, 2009 will allow Malik 2live a Oscal free life!
Tuesday, February 10, 2009
Upcoming Event
2009 Georgia Walk Now for Autism
Sunday May 3rd, 2009
10:00 am
Atlanta Georgia
See link below for registration:
www.walknowforautism.org/georgia, or call 770-451-0570.
Marcus Autism Center
You can take a look @ the Marcus Autism Center website...see link below:
http://www.marcus.org/
http://www.marcus.org/
New Beginnings
We were finally able 2get our appointment yesterday for the Marcus Autism Center. The Marcus Autism Center works with children who have development disabilities by offering different therapies and early interventions. Malik's regular pediatrician recommended us 2see a developmental specialist last summer. We had been waiting and waiting for our appointment, finally it came. The wait has been long and after our visit, I can see why. The specialist exhibited empathy, patience and was very nuturing it was a great experience.
I learned about differenet technologies 4 understanding Autism like micro ray (which is not new but, new 2me) the various therapies, and resources that maybe available 2us but, the best part of our visit yesterday was MALIK, he was UNBELIEVABLE! We have seen so many specialist and doctors in his mere 14 years usually when we enter any kind of medical facility it becomes a biiiiiggggg problem but, yesterday he was very cooperative, receptive, and followed directions very well. He allowed the specialist 2listen 2his heart, he breathed deeply,had his weight, height and blood pressure taken and my mother will find this amazing he did not fight, kick, or scream when she looked in his ears! Malik was absolutely wonderful!
I've always heard from his teachers and different therapist that he would get better as he gets older, well its coming true. I guess with him being a teenager and all, the baby tantrums r so over.
I think this will be a fresh start 4us 2learn and continue 2push Malik, and as one of his teachers insist "take him out of his comfort zone" I plan 2 be more accliamated and focused, so Malik can be as independent as possible for his adult life.
Thats the thing about New Beginnings the Possiblities r Endless !
I learned about differenet technologies 4 understanding Autism like micro ray (which is not new but, new 2me) the various therapies, and resources that maybe available 2us but, the best part of our visit yesterday was MALIK, he was UNBELIEVABLE! We have seen so many specialist and doctors in his mere 14 years usually when we enter any kind of medical facility it becomes a biiiiiggggg problem but, yesterday he was very cooperative, receptive, and followed directions very well. He allowed the specialist 2listen 2his heart, he breathed deeply,had his weight, height and blood pressure taken and my mother will find this amazing he did not fight, kick, or scream when she looked in his ears! Malik was absolutely wonderful!
I've always heard from his teachers and different therapist that he would get better as he gets older, well its coming true. I guess with him being a teenager and all, the baby tantrums r so over.
I think this will be a fresh start 4us 2learn and continue 2push Malik, and as one of his teachers insist "take him out of his comfort zone" I plan 2 be more accliamated and focused, so Malik can be as independent as possible for his adult life.
Thats the thing about New Beginnings the Possiblities r Endless !
Saturday, February 7, 2009
Being Thankful
At times I look at Malik and I am truly amazed ! Anyone who knows him can attest 2 him being such a loving, smart, sweet kid. I am in awe of how far Malik has come, alot of daily activities people take for granted Malik would struggle with, so now when Malik does anything its like he discovered a cure for a dreadful disease, and I become ecstatic! I get this way because I remember there was a time when I couldn't fathom the idea of Malik being able 2 function in any normal daily capacity. A small task like being able 2hold his fork while eating, watching cartoons and laughing appropriately, being able 2walk outside without running n2 the street, being able 2 hold his food down without throwing up, or just being able 2 be around a lot of people and hear different sounds like clapping, talking, and music without his sensors being overloaded. He would really struggle with small things like that and at the time I didn't understand it! I was very ignorant about Autism and I along with my family had no clue!
I can recall one particular evening when my nephew Buddah stayed over our house. Buddah is 1year older than Malik. So, they may have been about 4 & 3. I guess after becoming frustrated while playing with Malik my nephew came to me as asked "'TeeTee, why Malik don't play right?" I was absolutely stumped I never realized how Autism would effect Malik's social life until that moment. It's an indescribable feeling that comes over u, when u realize as a parent your child will probably not be able 2 compete in any sports, or be able 2 communicate with his peers. I realized then that this Autism thing would impact his life. About this time is when I started praying 2God 2 fix Malik! I prayed and prayed for Malik 2 be so called "normal" and "play right." When my prayers weren't answered I became angry & ashamed. I cried constantly, I mean constantly! I felt betrayed & abandoned by God. At times, I felt as if I were loosing my mind. I kept my feelings locked up inside and expressed them 2no1. Through constant love and support and dialogue with my husband Shawn I regained a foot back n2 reality and started 2 deal with this issue of Autism. I started 2look around and become thankful 4what I did have instead of what I didn't. One nite at home after putting Malik 2bed I asked Shawn If God were 2come and knock on our door and offer us a new so called "normal" Malik, would u take him? He said NO absolutely NOT ! We both agreed if we took the new and improved Malik it would be admitting we didn't want him or that something was wrong with our Malik.
I am Thankful 2 my son Malik 4showing me how 2love unconditionally! and allowing me 2become the best parent and person I can be! Malik is my inspiration! God I'm so THANKFUL!!!!
I can recall one particular evening when my nephew Buddah stayed over our house. Buddah is 1year older than Malik. So, they may have been about 4 & 3. I guess after becoming frustrated while playing with Malik my nephew came to me as asked "'TeeTee, why Malik don't play right?" I was absolutely stumped I never realized how Autism would effect Malik's social life until that moment. It's an indescribable feeling that comes over u, when u realize as a parent your child will probably not be able 2 compete in any sports, or be able 2 communicate with his peers. I realized then that this Autism thing would impact his life. About this time is when I started praying 2God 2 fix Malik! I prayed and prayed for Malik 2 be so called "normal" and "play right." When my prayers weren't answered I became angry & ashamed. I cried constantly, I mean constantly! I felt betrayed & abandoned by God. At times, I felt as if I were loosing my mind. I kept my feelings locked up inside and expressed them 2no1. Through constant love and support and dialogue with my husband Shawn I regained a foot back n2 reality and started 2 deal with this issue of Autism. I started 2look around and become thankful 4what I did have instead of what I didn't. One nite at home after putting Malik 2bed I asked Shawn If God were 2come and knock on our door and offer us a new so called "normal" Malik, would u take him? He said NO absolutely NOT ! We both agreed if we took the new and improved Malik it would be admitting we didn't want him or that something was wrong with our Malik.
I am Thankful 2 my son Malik 4showing me how 2love unconditionally! and allowing me 2become the best parent and person I can be! Malik is my inspiration! God I'm so THANKFUL!!!!
Wednesday, February 4, 2009
INFORMATION
Hello All,
I stumbled upon a story on CNN's website. It's about The Bilson family and their quest for help in coping with their thirteen year old daughter Marissa. Like Malik, Marissa is a child with Autism.
Marissa's parents are having difficulty dealing with her so they enlisted the help of an organization called Autism Partnership (AP).
I thought this could be a chance for you all 2 c first hand into the lives of one family who has a child with Autism.
click on link below:
http://www.cnn.com/2009/HEALTH/02/04/autism.resolution/index.html
I stumbled upon a story on CNN's website. It's about The Bilson family and their quest for help in coping with their thirteen year old daughter Marissa. Like Malik, Marissa is a child with Autism.
Marissa's parents are having difficulty dealing with her so they enlisted the help of an organization called Autism Partnership (AP).
I thought this could be a chance for you all 2 c first hand into the lives of one family who has a child with Autism.
click on link below:
http://www.cnn.com/2009/HEALTH/02/04/autism.resolution/index.html
Tuesday, February 3, 2009
Encouragement
I've been receiving such positive feedback from everyone about my blog, it has been wonderful! The encouragement means so much 2 me its hard 2 actually put it in words. My heart is so full, its just a beautiful feeling!
Especially since this whole blogging thing is such a new concept 2 me. I cant believe how comfortable I am with it. There was a time when talking about Malik's challenges used 2be difficult 4me. I felt as if no one understood or could relate 2what was happening 2 us. I couldn't think of anyone who had a child like mine. Not a friend, co-worker, or family member and because of that type of thinking I subconsciously begain 2 shut down from everyone. I went thru a period where I blamed myself first, then my husband! After I played the blame game I became very angry. Angry at everyone! I know during that time alot of my friends and family members couldn't understand my behavior well, it was because I couldn't understand it myself. It was around this time Malik entered the Early Intervention Program @ The Herbert E. Birch School in Washington Heights, NYC and we began 2live again. Birch was such an excellent program they implemented physical, occupational, and speech therapy in Malik's curriculum and we saw an immediate difference. Through these constant and repetitive therapies Shawn and I regained hope!!! That school was a Godsend the staff nutured, loved, and encouraged Malik 2 his fullest potential ! Thru Birch my family regained ourselves.
All the encouragement felt good then, and it feels really good now !!!!!!
Especially since this whole blogging thing is such a new concept 2 me. I cant believe how comfortable I am with it. There was a time when talking about Malik's challenges used 2be difficult 4me. I felt as if no one understood or could relate 2what was happening 2 us. I couldn't think of anyone who had a child like mine. Not a friend, co-worker, or family member and because of that type of thinking I subconsciously begain 2 shut down from everyone. I went thru a period where I blamed myself first, then my husband! After I played the blame game I became very angry. Angry at everyone! I know during that time alot of my friends and family members couldn't understand my behavior well, it was because I couldn't understand it myself. It was around this time Malik entered the Early Intervention Program @ The Herbert E. Birch School in Washington Heights, NYC and we began 2live again. Birch was such an excellent program they implemented physical, occupational, and speech therapy in Malik's curriculum and we saw an immediate difference. Through these constant and repetitive therapies Shawn and I regained hope!!! That school was a Godsend the staff nutured, loved, and encouraged Malik 2 his fullest potential ! Thru Birch my family regained ourselves.
All the encouragement felt good then, and it feels really good now !!!!!!
Monday, February 2, 2009
AUTISM SCREENING
Autism sceening is on the top of President Obama's medical to do list ....see link below
http://www.usnews.com/blogs/on-parenting/2009/01/21/autism-screening-tops-obamas-medical-to-do-list.html
http://www.usnews.com/blogs/on-parenting/2009/01/21/autism-screening-tops-obamas-medical-to-do-list.html
Sunday, February 1, 2009
JOURNALING
For as long as I can remember I've had an interest in the english language particularly writing. While my life has definitely been a rollercoaster ride I never felt compelled 2write down any of my experiences. I always figured who would want 2read about me or anything I would have 2say?
Those feelings changed when Malik Robert Moore came n2 my life. I started journaling throughout my pregnancy. I believe those nine months were the happiest times I've ever experienced. Even when I was told I developed gestational diabeties. It was all good!
When Malik came home, I found it impossible to continue journaling.
Reality set in ! Motherhood wasn't so cute anymore, eventhough the hardwork began. Malik was a still such a joy. He was so sweet, and beautiful. He had these big beautiful brown eyez, he would sometimes look at me as if he could see right thru me and I often wondered what he was thinking ? At times I would talk 2him and he would look at me as if he understood exactly what I was saying. Of course, me being a new mother I often told anyone who would listen how gifted my child was. Oooh but, those times were often overshadowed by the constant crying. Malik was a colicy baby. Which everyone said was normal but, I also noticed Malik would regurgitate after just about each feeding . Now, lets understand I'm not talking about throwing up like babies do when they are full, no I mean milk would gush out his mouth very violently, it often scared me. Now, I had been around babies all my life so, needless 2say I knew that was not normal. I can recall explaining this 2 Malik's pediatrician and she inturn patronized me, assuring me each child throws up and it was normal. Needless 2 say I changed peiatricians at least 3x's. We finally got in touch with a pediatrian who basically saved our lives. We were referred 2Dr. Joan Budd @ Montifere in the Bronx she was the best thing that happened 2us!
As Malik's life and routine started 2change from us getting early intervention thru Dr.Budd
I started 2 journal again. It was so refreshing 2start a whole new chapter of our lives. Journaling basically saved me all over again. Some years later I submitted a story which was inspired thru my entries 2 an organization called "Familes Of Children Under Stress "(FOCUS) Our story appears in the November/December 2006 issue, the web address is : http://www.focus-ga-org/
Writing that article helped me 2 remember how theraputic journaling had been. I can say now with all honesty I can't ever imagine life without me journaling !
Those feelings changed when Malik Robert Moore came n2 my life. I started journaling throughout my pregnancy. I believe those nine months were the happiest times I've ever experienced. Even when I was told I developed gestational diabeties. It was all good!
When Malik came home, I found it impossible to continue journaling.
Reality set in ! Motherhood wasn't so cute anymore, eventhough the hardwork began. Malik was a still such a joy. He was so sweet, and beautiful. He had these big beautiful brown eyez, he would sometimes look at me as if he could see right thru me and I often wondered what he was thinking ? At times I would talk 2him and he would look at me as if he understood exactly what I was saying. Of course, me being a new mother I often told anyone who would listen how gifted my child was. Oooh but, those times were often overshadowed by the constant crying. Malik was a colicy baby. Which everyone said was normal but, I also noticed Malik would regurgitate after just about each feeding . Now, lets understand I'm not talking about throwing up like babies do when they are full, no I mean milk would gush out his mouth very violently, it often scared me. Now, I had been around babies all my life so, needless 2say I knew that was not normal. I can recall explaining this 2 Malik's pediatrician and she inturn patronized me, assuring me each child throws up and it was normal. Needless 2 say I changed peiatricians at least 3x's. We finally got in touch with a pediatrian who basically saved our lives. We were referred 2Dr. Joan Budd @ Montifere in the Bronx she was the best thing that happened 2us!
As Malik's life and routine started 2change from us getting early intervention thru Dr.Budd
I started 2 journal again. It was so refreshing 2start a whole new chapter of our lives. Journaling basically saved me all over again. Some years later I submitted a story which was inspired thru my entries 2 an organization called "Familes Of Children Under Stress "(FOCUS) Our story appears in the November/December 2006 issue, the web address is : http://www.focus-ga-org/
Writing that article helped me 2 remember how theraputic journaling had been. I can say now with all honesty I can't ever imagine life without me journaling !
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