Finally .....we saw the doctor,.... After the waiting room experience I realized we had another new Dr. I didn't catch her name (her name is written on forms she gave me)
The new Dr wanted 2take blood test & urine so they could see how Malik was doing ... of course Malik wasnt goin 4it!!! He fought that blood taker ....boyyyeeeee ...then he fought me ..... I excused him...bcuz I figured he was still as angry as I was about the 2n the waiting rm ... boy, is Malik strong!
Bcuz he wouldn't allow the PCT to take his blood, we had 2go to the hospital where they had the equiptment 2strap or hold Malik down 2draw his blood...so we go all the way 2 the hospital and he sat there and let them take his blood w/no problem ....... I looked at him and said "of course u would ....of course u'll allow them 2take blood after we came all the way over here" ....
We have to wait until the potassium and vitiamin D/C levels come back along w/the urine sample and we'll go from there ...
I'm very optimistic the urine & blood samples will all come back good!
Tuesday, October 20, 2009
LONG WAY 2GO!
Yesterday, Malik went back 2his endocronologist for his check up .... the whole visit started on a bad note 4me . 1st of all ... i realize it's up 2parents 2keep track of appointments...but, as every1 knoe's life at times isnt that simple ...there r usually so many things going on n our day/week/month ...Its hard 4me 2keep track ......so what i started doing was write appt's n my bberry....with my technology skills being shabby ...I wrote the appt. 4 the actual day of Monday instead of reminding myself on Sunday about the appt on Monday!!! i knoe....iknoe .. ...duuuuhhhhh ...so we're running around late ... c r a z y trying 2get it together ...when we got there I had nerve 2let the office assistants knoe I was late becuz they did not remind me of the appt..... yea, further humiliating myself ! .... the office assistant informed me becuz we were late the dr. decided 2take the ppl who were here on time... b4 me!,,,,
WOW! ... I looked @ her n disbelief like " u really said that 2my face huh?" ...so Malik and I sat down n the waiting area & we're waitin,,,,,,, &waitin,..... & waitin........ when I notice a young man he could have been 14, 15 or so ...he kept staring @Malik ... ..now Malik is a slim tall young man ..like n e other kid but, when u watch and pay attention 2his behavior u'll start 2notice !
So I guess the young man was startin 2notice Malik ......becuz of Malik's constant need for physical stimulation ..he rocks back n forth n his seat and he uses his hand and moves it back n forth n front of his face, he smiles to himself, he twitches/jerks constantly w/his hand and whole body ... so, I could understand if u look at him then u notice his behavior then u look away u may look again then look back away ...but, n stead of the normal reaction I usually get from ppl ..this young man got his mothers attention .......and when she noticed Malik's behavior she looked at him then she burst out into laughter !!!!! then the young man laughed !!! ....
The behavior was so unexpected and caught me off guard I couldn't respond ...I just kept staring @them both!!! ... when I think about it now ...i'm glad i wasnt able 2respond bcuz i'm not 2sure what would have came out!! as n e mother is I am really really really PROTECTIVE over my special gift from GOD ....so it's a good thing when the nurse came thru the door & called our name I was still basically n a trance and never responded 2 that inexcusable behavior.... I can not control ppl's reaction 2 Malik's behavior and do not want 2 that would be toooo exhausting.... but ppl will not ....repeat will not make fun of his disability!!! ...the mother & son I encountered r exactly the type of ppl I fear! If her reaction was to laugh in front of my face think what she could have said or done had I not been there and not watching!!!!
While, the public is more educated and informed ...we still have a long way 2go !!!
anytime a grown woman w/a teenage son can find humor in another childs disability is not only ignorant but, says alot about us as a Society!!!
WOW! ... I looked @ her n disbelief like " u really said that 2my face huh?" ...so Malik and I sat down n the waiting area & we're waitin,,,,,,, &waitin,..... & waitin........ when I notice a young man he could have been 14, 15 or so ...he kept staring @Malik ... ..now Malik is a slim tall young man ..like n e other kid but, when u watch and pay attention 2his behavior u'll start 2notice !
So I guess the young man was startin 2notice Malik ......becuz of Malik's constant need for physical stimulation ..he rocks back n forth n his seat and he uses his hand and moves it back n forth n front of his face, he smiles to himself, he twitches/jerks constantly w/his hand and whole body ... so, I could understand if u look at him then u notice his behavior then u look away u may look again then look back away ...but, n stead of the normal reaction I usually get from ppl ..this young man got his mothers attention .......and when she noticed Malik's behavior she looked at him then she burst out into laughter !!!!! then the young man laughed !!! ....
The behavior was so unexpected and caught me off guard I couldn't respond ...I just kept staring @them both!!! ... when I think about it now ...i'm glad i wasnt able 2respond bcuz i'm not 2sure what would have came out!! as n e mother is I am really really really PROTECTIVE over my special gift from GOD ....so it's a good thing when the nurse came thru the door & called our name I was still basically n a trance and never responded 2 that inexcusable behavior.... I can not control ppl's reaction 2 Malik's behavior and do not want 2 that would be toooo exhausting.... but ppl will not ....repeat will not make fun of his disability!!! ...the mother & son I encountered r exactly the type of ppl I fear! If her reaction was to laugh in front of my face think what she could have said or done had I not been there and not watching!!!!
While, the public is more educated and informed ...we still have a long way 2go !!!
anytime a grown woman w/a teenage son can find humor in another childs disability is not only ignorant but, says alot about us as a Society!!!
Friday, October 9, 2009
HOLLY ROBINSON-PEETE!
I wanted 2share w/every1... I've recently been in touch w/mother, actress, autism activist Holly Robinson-Peete....I invited her 2read &join the blog. I am really trying 2tell our story of "Our Journey w/Autism"
In addition to Mrs Robinson-Peete I have submitted a story 2 Oprah's Angel Network and a few other local publications I am also actively trying 2complete the book!
So please continue 2pray & keep reading! ..
Thanks again for every1's continued support!
In addition to Mrs Robinson-Peete I have submitted a story 2 Oprah's Angel Network and a few other local publications I am also actively trying 2complete the book!
So please continue 2pray & keep reading! ..
Thanks again for every1's continued support!
FEELING BETTER!
Well, my whole household was recently down for the count! I'm so excited 2say we r all feeling betta!
The sniffles, sore throat, fever and cough started w/Malik, and me being the greedy always wanting 2be apart of Malik's world ...I got the sniffles the soar throat, cough and of course the headbanger headache along w/all the trimmings of chills and fever....My husband Shawn wasn't greedy ..he was not tryin 2be apart of our world ...he escaped w/just a lil soar throat and cough.....but, as I said we r all feeling so much better
Malik is out of schoool 2day and Monday... I plan 2celebrate our better health by treating him 2bowling 2morro..........
thanks 4 continued reading and support .....we'll blog soon......
The sniffles, sore throat, fever and cough started w/Malik, and me being the greedy always wanting 2be apart of Malik's world ...I got the sniffles the soar throat, cough and of course the headbanger headache along w/all the trimmings of chills and fever....My husband Shawn wasn't greedy ..he was not tryin 2be apart of our world ...he escaped w/just a lil soar throat and cough.....but, as I said we r all feeling so much better
Malik is out of schoool 2day and Monday... I plan 2celebrate our better health by treating him 2bowling 2morro..........
thanks 4 continued reading and support .....we'll blog soon......
NON VERBAL YOUNG MAN WRITES A PLAY
Great story about a non verbal young man who wrote a play with the assistance of a facilitated device.
click on the link below for full article:
http://www.timescall.com/communityTC/news-story.asp?ID=18437
click on the link below for full article:
http://www.timescall.com/communityTC/news-story.asp?ID=18437
WOW THIS IS STAGGERING!
1 in every 91 American Children have a diagnosis of Autism and 1 in every 58 boys r diagnoised!I wonder if the results of this study is becuz there r so many kids on the spectrum now? still, the numbers are staggering !
click on link below to read article
http://www.autismspeaks.com/
click on link below to read article
http://www.autismspeaks.com/
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